Keep hoping, and then hope some more...

Reading Carin's update tonight has left a lump in my throat; it's just heartbreaking to think that a family has to go through this. All I can do is send positive thoughts their way, and hope that they will get through this soon.

10/20

Tonight we completed the 10th of the 20 antibody infusions Ben will receive. Suffice to say, the past two days have been two of the most difficult we have faced yet in this journey. The combination of extreme pain and agitation has made caring for Ben exceedingly difficult. Following such a fun and beautiful week the past 48 hours seem cruel and unjust.

After Ben finally passed out last night I laid next to him pleading over and over, “Lord do not let this suffering be in vain, Lord do not let this suffering be in vain.”

We continue to beg. For mercy. For complete healing.